Personal Life

Ambition v. Spoons

I hate making banana bread. And it isn’t because I hate bananas or banana bread or even baking. It’s because somehow, no matter what I do or how I plan the bananas and I are never ready at the same time.

This has been a theme throughout my life, especially as an adult as my inflammatory issues have taken a toll on my energy levels. If I have the energy, I don’t have the inspiration. If I have the inspiration, I don’t have the energy to work on my creative projects.

If you’ve heard of spoon theory, should sound familiar to you. In short, spoon theory is the idea that we all have a certain allotment of energy (spoons), and certain activities cost more spoons that others. The problem with being neurodivergent and chronically ill is that there is no such thing as a work-life balance. There isn’t a single activity that doesn’t cost me spoons, whether they’re physical or mental.

Spending time with people outside my partner, costs me even if I greatly enjoy our time together. Washing my hair will ultimately feel better, but it will cost me energy to do, which means I end up putting it off until I have to because I have work or I put it off so long that it starts to bother me from a sensory perspective.

What people don’t seem to grasp with spoon theory and autism is that things cost you spoons that don’t always make sense to others or they cost a disproportionate amount. Going to the grocery store isn’t physically taxing for me, but the lights, the noise, trying not to get clipped in the parking lot, the people, remembering to get everything on my list (I need a list because I have gone totally blank at the store), acting “normal” at the checkout, etc. is a lot that most neurotypical people take for granted. For me, this mental stress converts into physical stress, so once I get home from the grocery store and unpack everything, I wind up in a heap of fatigue for a few hours decompressing. It’s the same thing with my job(s) and why I avoid going to conferences or conventions. Even if covid wasn’t a thing, they still suck the life out of me and require a multi-day recovery period. Part of the reason I diligently mask and try to reduce my chances of catching covid is because if I got long-covid/a post viral illness, I would have even less spoons to go around, and I can’t imagine limiting my life more.

I’ve tried to organize my life in such a way that I’m expending as few extra spoons as I possibly can, so I can still do my writing and creative stuff and not be an overstimulated misery to deal with. It sucks though because I don’t think most people who casually know me would think of me as disabled or even autistic, and people with invisible disabilities or neurodivergence will always be held to impossible standards. They might be attainable for a time, but they aren’t something most of us can manage long-term without burning ourselves out. There is no way for me to have a standard neurotypical work-life balance without losing something, whether it be hobbies, socializing, chores, or my actual job. Something will always be falling to the wayside, and in neurotypical society’s eyes, I will always be failing.

For people where most of these things are near effortless or the effort is only required in short bursts, they will probably never understand how much I struggle and how little of a safety net there is. There are many reasons I support Universal Basic Income (UBI), but one of the main reasons is for when people who are ND or disabled burn out or need time to recover from a flare, they won’t be left destitute or having to keep working at seemingly 100% while actively hurting themselves. We live in a society that is very much all or nothing. If you aren’t disabled enough, you get zero benefits/support. If you are able bodied enough, there is no safety net. The best way to support your neurodivergent or chronically ill friends is to help them out when they need it (after asking, of course) and pressuring your government and politicians to expand things that actually help our society and those who need that extra help or safety net. Being able bodied is a temporary state for most people. Shaping our society to support rather than penalize a state most of us will end up in will benefit everyone.

Personal Life · Writing

My End of 2023 Reflection

I’m not going to lie, I have been putting off writing a yearly review of 2023. By and large, this year has been awesome. My book won awards, I had a record number of preorders on The Reanimator’s Soul, I wrote a whole book, things have gone well– more than well. On the other hand, there were things that happened that upset me and have continued to grate on me all year. My fear is that this reflection will come off as unnecessarily bitter, which I don’t want for you (my readers) or for myself. I don’t want someone else’s assholery to poison my soul and that is something I will be working on as we move into 2024, especially since so many great things happened this year. Without further ado, let’s get into it.

Things That Went Really Well

This year has been awesome, and I want to thank my readers for that. Without you all, I wouldn’t have had nearly as good a year. You all were so enthusiastic about The Reanimator’s Soul‘s release in October, and you all put up The Reanimator’s Heart for a bunch of awards/categories. As someone who is a bit self-deprecating when it comes to awards, I was shocked to see my books repeatedly put up. Seriously, thank you all. The Reanimator’s Heart won third place in BBNYA 2023 (Book Blogger’s Novel of the Year Awards 2023) out of over 250 entries. My books are also up for the Indie Ink Awards in several categories, and The Reanimator’s Heart won “best historical fiction” in the Queer Indie Awards.

The Reanimator’s Heart was also Meet Cute Bookshop’s LGBT romance read for September. Hell, MY BOOK WAS IN A PHYSICAL STORE! That alone just blew my mind. I was also interviewed by Geeks Out about my books/writing. More importantly, my books got more fan art! I love artwork so much, and every time I find out that someone was moved to create something based around my characters I am just over the moon. Few things make me happier than fan art. I also commissioned art from OblivionsDream and really want to do that again in 2024.

I don’t want to go into sales numbers and all the nitty gritty of that, but I had a good year in that regard. I’ve been trying to build on the momentum of The Reanimator’s Heart‘s release with book two, and I think I achieved that. I had the most preorders I have ever had, which I did not expect at all. My sales overall have been strong (for me), and I’m hoping I can keep that up in 2024 as well. I’m also hoping that the various awards and such will sort of keep stoking that fire.

Things That Didn’t Go As Great

I need to get better at writing consistently. It’s something I have struggled with this year. Overall, I wrote quite a bit, but I often feel like my attention is all over the place. Stretching my attention muscles is something I really do want to work on going forward as well as getting into a more consistent writing routine. This year had some chaos that I know messed specifically with this. If I’m mentally doing not great, my writing suffers first, and when my writing isn’t going well, I can’t get mentally balanced. It is a vicious cycle.

When I was called for jury duty in July, my OCD kicked up. This was compounded by some assholerly caused by another author who repeatedly made my life miserable by being a bully to me and others I know. The first instance of this didn’t cause me that much angst back in February because, while angry about how they treated someone else, I muted/blocked them, deleted my reviews of their books, and said good riddance. Unfortunately, several months later (when my OCD was already acting up) they reappeared when they got in a beef with someone else I know. The bullying person somehow got access to conversations where several of us talked about our shared experiences of them being weirdly passive aggressive or being a straight-up bully, and they made our lives miserable. I ended up having to lock my Twitter for a bit because I was getting cryptic replies and ghost rts, despite having the other person blocked everywhere. It was stress I neither needed nor wanted.

Going forward, I need to move on. I know I have been stewing on this because this person hasn’t been negatively impacted at all, despite bullying ND people several times this year that I know of, because they sick their followers on anyone who even mentions they have behaved poorly. If you follow me on social media, you may have heard me mention that my hair fell out from stress; this was why. My brain doesn’t want to leave it alone, but it isn’t healthy to dwell and frankly, calling them out on it will only backfire on me. I have to accept that and focus on maintaining my mental health in 2024 and working on my stress levels. Taking care of my brain is something I need to get better about. My plan in 2024 is to forget they exist and wait til karma catches up with them or they pick a fight with the wrong person.

Things I’m Thankful For

Let’s clear the air of negativity by ending with talking about the people and things I am very thankful for this year.

All of you. Seriously, every one of my readers who have read my books, suggested them to others, left reviews, made art, replied kindly to my posts, you all have made my life so much brighter this year. I wish nothing but the best for you in 2024, whether that’s success, prosperity, peace, healing, I hope you get it.

My partner. My partner has been going on a journey of their own with their gender, mental health, neurodivergence, etc. This year has been tough for both of us, but my partner has been nothing but supportive, kind, and loving, even when dealing with their own stuff. I love them immensely and cannot wait for another year with them.

My author friends who are my social network, my moral support system, and vast wells of knowledge. I couldn’t ask for better peeps to hang with than all of you. I plan to keep cheering you all on in the coming year.

And of course, my students, who make my daily life so much brighter, richer, and sillier.


Overall, this was a really fantastic year, and I just wanted to thank all of you [again] for making it one.

I’ll be posting a goals for 2024 post soon, so stay tuned for more on that in the coming weeks. I hope you all have a safe and happy new year!

Personal Life

Neurodivergence and Jury Duty

Sometimes it’s easy to forget I’m autistic. I have sort of built a life for myself where my weaknesses are minimized and my strengths are (mostly) highlighted. My job allows me plenty of decompression time, I can sort of pick my time slot, and my schedule is very predictable 90% of the time. The problem comes when I’m thrown a curve ball, and I’m repeatedly reminded that the world isn’t built for my brain.

In the first half of July, I had jury duty. To be clear, I didn’t get picked, but I had to attend jury duty selection, which means a week of my life was put on hold with a metaphorical piano hanging over my head. The funny thing is, I think actual jury duty would be far easier for me to deal with than the selection process, but let’s talk about the ways in which this was not an accessible or smooth experience for me as an autistic person.

Faces on cameras

It is overwhelming for me to stare at 60+ people on camera and know they are staring back at me. When I taught remotely early on in the pandemic, I didn’t require my students to show their faces, and I didn’t show mine. Every face is a lot of data or background noise/sensory input to deal with. Being on camera, even if I’m meant to be idle while waiting, feels performative. I’m hyper aware of every micro expression I am or am not making. As autistics, we’re often penalized for our resting bitch face or lack of expression, so I sat there for hours schooling my face into something close enough to mild interest that no one would say anything. On top of this, there were no captions (if there were, I couldn’t figure out how to turn them on). It’s hard to understand people when Zoom is cutting in and out, and I assumed I could turn it on and never asked anyone to do so preemptively. Things got garbled, especially when I was trying to listen and not look at myself or other people.

Schedules? Don’t know her

This was honestly the worst part. I never knew when anything was supposed to happen, or we’re told one thing but other instructions contradict it. One paper says you will hear from us by 5:30 PM, the woman on camera says 5:00 PM. The orientation itself wasn’t bad, but it was 3+ hours of instructions and time killing followed by being stuck in OCD purgatory (more on that later). I didn’t know if I was allowed to get up and go to the bathroom or if I could run my dogs outside really fast. The same thing happened during the selection process when we were initially told they would tell us who was on-deck to speak to the judge, so if we needed to get water or pee, we could. Then, they stopped telling us and just started calling people. The flipflopping on the setup was frustrating because as soon as I thought I got a handle on what was going on, it changed. On top of this, you never know what day you can or will be called. They say check your email after 5 PM every day this week to hear about the next day. That’s a lot of time to have zero predictability in my schedule. By Wednesday, I had no idea what day it was and felt completely unmoored. I didn’t even know if there was a possibility of being called on Friday. The paperwork made it seem like yes while the judge that talked to us made it sound like it didn’t happen. Nothing makes sense in jury duty selection.

Checking OCD trigger central

I have checking OCD (I came to understand that’s what it was during a therapy appointment during the pandemic). It used to manifest as checking my dad’s Fitbit all day while he was at work to monitor his heart rate because the fear was if I don’t check, he might have a major heart event, not realize it, and die. Since he passed, my checking OCD has been mostly under control. On the first day of jury selection, they said the worst thing they could have to me, “Check your email every 15-20 minutes.” Now, to normal people, this translates to check your email at least 2-3 times an hour. My paranoid, anxiety ridden self took this as check your email every 5-10 minutes, don’t believe it, refresh it, do it again, and check your phone. I was so afraid that I would get involved in something and miss an important email that I basically sat at my computer from 11-4:00 (when I got an email from them) doing nothing but futz around on Twitter and check my email. Once I realized I got an email AND a text if they needed me, that curbed my checking anxiety a bit, but the feeling of being yanked back into that spiral was horrible.

Yes or no questions

I hate yes or no questions, especially when people demand it be a yes or no under penalty of law for lying. Logically, I know I’m not being hauled off to jail for not 100% correctly answering a question (note: I don’t mean untruthfully, I mean not correct), but the fear is there. It trips me up in answering things because I don’t want to answer in haste and lie, but then, I think too hard about a question and get confused. Have you ever taken a standardized test or read a government form and had to parse it out for 10 minutes because you think you know what it’s asking, but you don’t want to be penalized if you’re wrong? That’s the autistic experience of dealing with the legal system, and people wrongly assume you’re lying if you spend too long thinking before you answer. I, unfortunately, was called to speak to the judge to see if I qualified for a case. The questions that were asked confused me, and I said as much. “Would you be prejudiced against a defendant just because they’re a defendant?” I sat there for a second not understanding why anyone would feel that way, asked the judge to explain it because it made zero sense to me, only to realize that was exactly what they were asking. My favorite was the judge asking if I had any conditions or anything that might make it impossible to fulfill my duty as a juror. I have never been a part of jury duty, so I honestly have no frame of reference as to whether or not I would be a functional human being in this situation or if I would just power down and dissociate. It’s hard to answer when I honestly don’t know. If you say that though, people look at you like you’re crazy, so I kept that to myself but said something else that got me disqualified from the case.

Bonus: misgendering!

Always fun when you have to use your full legal name for something when it’s a name you never use. I tried putting (Kara) next to it and still got full named. In a pre-service survey they ask if you’re male, female, or nonbinary. I put nonbinary. I’m 90% sure I did. On Zoom, I filled in my pronouns as they/them. I wore something gender neutral, I moved my computer to only show me from the shoulders up, I had my hair pulled back. I did everything I could and get miss-ed and ma’am-ed by the judge repeatedly. Once he said, “men and women” and “he or she” repeatedly during his warm-up speech, I figured it was a lost cause, but it still was like the moldy icing on the already stressful cake. Before someone says, “Why didn’t you say something?”, we all know rule one of jury duty and the legal system in general is don’t bring attention to yourself.

Kara, what was the point of this?

This was not meant to be a rambling complaint-fest. I wanted to point out that something most people find to be a minor inconvenience is actually stressful for some of us. Obviously, there’s always the financial stress of missing work when you get called for jury duty, but in this case, it’s more so the mental stress and anxiety this whole process causes in people who need clearly delineated information, consistency, and predictability. A week of constant anxiety feels like overkill for such a mundane process, but that’s what it was. The worst part is, I don’t even know what accommodations someone could ask for if the process is supposed to be random. Randomness inherently runs counter to what I need, but I wish the expectations and schedule could at least be more clear cut and not taken for granted by those who deal with jurors every day. For jury duty to be the fair and equitable process it hopes to be (though we all know its not), accommodating neurodivergent jurors would be a great place to start.

Personal Life

On Autistic (Un)masking

Something I have been trying to do these past few months is mask less. Masking in this case is not trying to act neurotypical. Most autistic and neurodivergent people fake it til we make it. We know there is a social protocol that we should follow, whether it makes any logical sense to us or not. If you aren’t sure what I mean, here’s an example: When someone says, “How are you?” they really aren’t asking how you are. Unless they are a very good friend or your partner or someone on that level, they don’t care. It’s an empty small talk question, and the only acceptable answer is good, okay, or to complain about something you both don’t like (like work or a sports team losing). If you say, “Ugh, my IBS was acting up over the weekend and I’m exhausted,” they will look at you like you have lost your mind or stop asking you how you are. Or my absolute favorite, they will ask and keep walking. Tell me you don’t care without telling me you don’t care.

Anyway, masking is somehow equal parts passive and purposeful. There are times when the mask just automatically appears, like someone catches you off-guard or you say your automatic responses to things. For people who may not realize they’re autistic or can’t unmask, it will be far more automatic but still completely exhausting. Most of the time, masking is something we feel keenly, especially if we’ve been doing it for a long time. It’s the mental equivalent of unzipping a tight pair of pants when you get home or tossing off your bra after work. When I’m masking, I’m constantly doing mental calculations. Am I holding eye contact long enough? Am I doing it too long? Do people think I’m being shifty? Am I talking about something inappropriate? Have I said something by accident that will make my friend hate me? Masking makes any prolonged social interaction something I need days to recover from. Being “normal” is exhausting, and even masking, I don’t do a terribly good job.

What I’ve tried doing is essentially “coming out” as autistic to my students. Quite a few of them are neurodivergent, which helps. I don’t lead with it day one, but I make it clear that I accept self-diagnoses and self-made accommodations for people who are neurodivergent. Once I start talking, I’m sure some have an inkling. Eventually this semester, I came out to both classes sort of by accident, and it was a MASSIVE relief. I still watch my words and make sure I don’t accidentally hurt someone’s feelings, but not having to worry about eye contact or modulating my speech patterns makes teaching so much less exhausting. Personally, I think I’m more engaging when I loosen up and allow myself to be weird in class (especially knowing the laughs I receive are not mocking). The hope is that it will also make my students more comfortable, and for some, meeting a neurodivergent professor and/or writer may also be affirming.

The problem is that because I’m masking less, when I feel like I need to mask due to the situation (doctor’s office, grocery store, extended family, etc.), it is exhausting. It is so much worse than it usually is because I’m not accustomed to doing it as much. It’s like not exercising and being told to run a mile. I just want to collapse in a heap of social exhaustion after masking now. I used to be able to sort of hold it off until I totally fried myself, which is not great, and it sucks because I want to mask less. I need to. It’s better for my mental health to not be “on” constantly, especially when being “on,” is being akin to being a different person. But I can’t not mask all the time because it isn’t safe to, and the social repercussions of being unmasked around people who don’t understand are not worth the backlash. I absolutely dread the times I need to socially mask now, and I hate how much I’m not looking forward to holiday gatherings because of it. You would think family would be the people you could be yourself with, but when they think of autism as only non-verbal people who have high needs, they don’t believe you, even if you meet the criteria in spades and they think you’re weird.

I’m already still semi in the closet with being queer and nonbinary around my family, so compounding it with not outing myself as autistic, creates a day full of exhaustion and stifling un-Kara-ness. The stiff smiling, awkward(er) version of me feels so pale in comparison to the vibrant weirdo I know I can be when I’m with my students or my friends/partner. I just wish I felt comfortable letting that version of me out more often.

Personal Life

On Classroom Accommodations

A post online the other day brought up something that hits on two major intersections in my life: teaching and being neurodivergent. The post talked about how professors/teachers need to stop treating students’ accommodations as charity they allow them to have and something that allows a marginalized person to participate more fully in the class/discussion/college community.

If you don’t know what accommodations are, they’re often things like giving a student with ADHD more time in class for tests or allowing a diabetic student to eat in class if their blood sugar is low. In order for students to receive accommodations in class, there are often a lot of hoops they have to jump through, such as having a diagnosis, getting a doctor to write up the accommodation, having the school approve it, having it passed out to the professors and signed off on, AND the professor still can sort of shrug it off. The student can always complain to academic affairs or whatever office deals with IEPs/accommodations, but that requires energy and cooperation from the office with no promise that the professor will ultimately cooperate or not hold it against the student for pushing back.

Something I instituted in my class this semester is a self-diagnosis policy. Often students who are autistic or have ADHD struggle to get a diagnosis as an adult or find getting a diagnosis could actually work against them (I have avoided an official autism diagnosis because you can be denied organ transplants among other things. Look it up; it’s an awful, ableist policy centered around “quality of life”). Since my classes are writing-focused, there aren’t tests, which makes allowing for extra time or other accommodations easier (no dealing with the Academic Support Center, etc.), but I have had students with anxiety, migraines, stomach issues, etc. who end up missing class more than the average student. My policy is now that as long as you keep up with your work and give me a heads-up, we’re good.

There’s some professor out there who is going, “But if I let one do that, they’ll all do that!” Shockingly, they don’t. They really, really don’t. I have had students reach out to me due to extenuating circumstances or medical issues, and so far, they always keep up with their work. The rest of the class continues on as is. Those who need it, use it. Those who don’t, don’t. If you’re not sure why this matters for quality of life, let me tell you the story of why I stopped going to a professional to get my hair cut.

As a little background, I have eczema crop up all over my body. In the past, before I started taking a biologic, it was severe, and it’s aggravated by chemicals, fragrances, etc. to the point that I only use one kind of shampoo. I also have sensory problems where things most people take for granted REALLY bother me. People touching my head or face is not a fun experience. The hair dryer is hell as it is hot, loud, but the stop and start of it just frays my nerves after while. Even a hairbrush running across my scalp bothers me if I’m stressed enough.

My aunt was going to one hairdresser who was younger and very nice. I asked my aunt to ask her if I could come to the salon with a wet head, so she didn’t have to wash my hair (aka avoid the shampoo and copious head touching). She agreed, and I went. Everything went great. My hair looked nice, and she even asked if I wanted my hair dried or left damp the second time I visited her, and from then on, we just left it damp to dry naturally. I have straight hair that dries quickly, so it looks fine after. Avoiding having my hair washed and dried made getting a haircut far less stressful. I actually didn’t hate it, though the talking throughout was less than ideal but doable.

The problem came up with my preferred hairdresser switched days and salons, and I couldn’t see her. I was desperate for a haircut before the semester started that year, so I booked an appointment with someone my other aunt used in the same salon. Big mistake. She ran roughshod over my needs. I came with a wet head, and she made me get my hair washed. I protested, and she just ushered me over the shampoo girl anyway. It caught me by such surprise that I just sort of blanked instead of fighting it further. Everything went downhill from there. My head already was itching. I told her what I wanted and showed her pictures, and she went rogue because a different length would “look better with my face.” I asked if she could not blow dry my hair, and she ignored me again. By the time I left, I was ready to cry. I was angry and frustrated that she ignored things she could have easily accommodated and completely overstimulated me. It’s been several years, and I haven’t gone back to get my hair professionally cut for fear that any accommodation I ask for will be treated like I’m being dramatic.

I keep this trip to the salon in mind when students tell me they’re struggling with something or need something to help them succeed. It isn’t “special” treatment, it’s creating equity in the classroom by leveling the playing field and removing barriers that would hinder a students’ ability to function. By ignoring an accommodation, at best, you’re making things harder than they have to be. At worst, you are actively harming your student. The hairdryer made me more overstimulated, making it harder to get through the haircut experience. The shampoo full of fragrances I didn’t want them to use actively harmed my skin, and I got an eczema flare on my scalp and neck the next day.

Something other teachers might want to consider when a students asks for an official or unofficial accommodation is that not every disability or illness is visible or consistent. I have IBS. Luckily it’s IBS-C, which doesn’t interfere too much with my life. Imagine having IBS-D and telling your professor you can’t come to a workshop class because you’re in the middle of a flare (aka frequent bathroom trips) but you will send in your feedback to your groupmates in hopes of getting credit. And your professor fires back, you look fine most of the time and to get credit, you have to be present bodily. Should your student have to disclose that they are worried about shitting themselves in class in order for you to let them do their work remotely? On the neurodivergent side of things, I don’t tell everyone I’m neurodivergent because people have some weird assumptions they will apply to you. If you say you’re autistic, people will treat you differently if they don’t know you and what you’re capable of. Students shouldn’t have to make themselves vulnerable and open to potential ridicule or ableism by disclosing specifics.

As we head into the middle of the semester, I want you to think about what your reaction to reading this was. My fear is always that someone says, “If they can’t handle it, they shouldn’t be here.” Why shouldn’t they? Why shouldn’t an autistic student or a chronically ill student be at school? What about their condition precludes them from accessing a good education? What makes their education less worthy than that of their neurotypical or non-chronically ill peer? The bootstrap attitude is ableist bullshit, and if you’re reaction was to question the student’s value or fitness, I hope you will seek out chronically ill or neurodivergent authors to work on yourself because you really don’t belong in a classroom if you’re going to actively hinder your students. To those who want to better support their students, I hope you will allow for unofficial accommodations in your future classrooms.