Personal Life

On Autism and Disability

April is Autism Acceptance Month, and right now, I’m reminded of how autism is a part of who I am but also very much a disability. If you want to know what it feels like to be autistic and seemingly low support needs in our society, it’s like being told you’re supposed to juggle constantly, but you aren’t very good at juggling and people keep adding balls. When you’re in front of people (if you’re good at masking your autism or have a job), you can manage to juggle decently for an audience for a while. Sometimes, they even think you’re good at it, but the second you’re alone, you start dropping balls and getting mad at yourself for doing so. No matter how much you practice, you really aren’t good at it, but if the conditions are perfect and you’re feeling good mentally, you can manage more balls than usual. The problem is that other people see that, assume you can do that all the time like they can, and get mad at you when you can’t consistently perform. Is the metaphor a little tortured? Probably, but it serves its purpose.

Right now, I’m juggling a lot of balls, my arms are tired, and I think some of the balls might be on fire. That’s the problem with being a seemingly low support needs autistic person with a master’s degree; people assume you are consistently fine and expect you to perform as such. When I was younger, I used to be able to hold it together to the end of the semester, and once it ended, I would crash and be completely unable to function for like a week. As a 30+ year old adult, I no longer am able to do that without a very large cost physically, emotionally, and mentally, and I refuse to do so. Unfortunately, I can’t call out sick with autism or autistic burnout.

If you’ve been following the dog saga this year, you know all of the trauma and chaos that has unfolded in my life since February. If you haven’t, the Reader’s Digest version is that my oldest dog died, my middle dog scared the shit out of me by bleeding heavily and spitting out a benign tumor (he’s fine now), and my youngest dog had a soft tissue sarcoma on her nose and is currently going through daily radiation treatments. To say 2026 has been a stressful year is an understatement. One of the emotional components of autism is that you don’t process emotions like a neurotypical person, which means I’m great in an emergency and an emotional wreck on a random Tuesday when I’m suddenly whacked over the head with whatever emotion I should have felt in the moment. When a lot of high emotion things have been going on, I don’t always know what I’m feeling or what I’m upset about beyond overwhelmed. As you can imagine, not knowing what you’re feeling or why makes dealing with those emotions difficult.

In order to deal with that stress, my body has decided that the best course of action is to stay in fight or flight mode 24/7. After weeks of hypervigilance, I am emotionally and physically exhausted. Being in that state makes it hard to get anything done beyond what I force myself to do (like grading papers) and even that is slower than I would like. It also causes my chronic health issues to kick up. Most autistic people have several comorbidities that are tied to connective tissue disorders. For me, this is autoimmune problems and hypermobility that is likely some form of Ehlers Danlos. The autistic burnout feeds into the autoimmune issue which in turn worsens the burnout by sucking up your energy reserves and making you feel crappy. It becomes a vicious cycle until your ability to function is well and truly in the shitter.

More than anything, I would like to lay on the floor with my dogs and watch Kitchen Nightmares or Ghost Hunters for a week straight without a single thing brought to my attention that could stress me out. With our current administration, I doubt that would be possible, but I’m trying to cling onto what functionality I have until the last few weeks of the semester are over. I was lamenting on Bluesky about how I wish Biden was president again solely because I know I would be handling all of this better without the background noise of political chaos. I had major autistic burnout during Trump’s first administration in 2018 to the point that I tanked what momentum I had built with my writing career. I really don’t want to do that again, and the only good thing about experiencing it once is that it’s easier to recognize (hopefully) the next time.

The point of this post wasn’t to listen to me gripe about how my life has been sucky for the past few months but to illustrate that autistic adults who have partners, jobs, driver’s licenses, etc. are still disabled. I appreciate having autism for the strong sense of justice/fairness, the different way I think and view the world, etc., yet I’m still disabled. Our society isn’t set up for people to say, “I need a week long time out because my nerves are fried.” Most jobs will tell you to either take vacation you might not have or to find a new job, and ultimately, this is one of the many reasons autistic adults end up under- or unemployed. If I wasn’t in academia where I work only a few days a week and have summers off, I would be fried constantly. The trade off is that I make abysmally low pay and am underemployed. Most of us would love to find a situation where we could do something we’re good at under conditions that don’t make us pray for death or feel unappreciated. When we tell you that we can’t do something or that we truly don’t want to, please believe that we aren’t just being difficult. It takes a toll on us that is far greater than what neurotypical people experience, and what’s an inconvenience for you is something that causes us to be less than functional for several days. We save up our energy or functionality and carefully plan how to allocate it, so when plans change or something unexpected happens, we end up paying the price for it.

Personal Life

On Autistic (Un)masking

Something I have been trying to do these past few months is mask less. Masking in this case is not trying to act neurotypical. Most autistic and neurodivergent people fake it til we make it. We know there is a social protocol that we should follow, whether it makes any logical sense to us or not. If you aren’t sure what I mean, here’s an example: When someone says, “How are you?” they really aren’t asking how you are. Unless they are a very good friend or your partner or someone on that level, they don’t care. It’s an empty small talk question, and the only acceptable answer is good, okay, or to complain about something you both don’t like (like work or a sports team losing). If you say, “Ugh, my IBS was acting up over the weekend and I’m exhausted,” they will look at you like you have lost your mind or stop asking you how you are. Or my absolute favorite, they will ask and keep walking. Tell me you don’t care without telling me you don’t care.

Anyway, masking is somehow equal parts passive and purposeful. There are times when the mask just automatically appears, like someone catches you off-guard or you say your automatic responses to things. For people who may not realize they’re autistic or can’t unmask, it will be far more automatic but still completely exhausting. Most of the time, masking is something we feel keenly, especially if we’ve been doing it for a long time. It’s the mental equivalent of unzipping a tight pair of pants when you get home or tossing off your bra after work. When I’m masking, I’m constantly doing mental calculations. Am I holding eye contact long enough? Am I doing it too long? Do people think I’m being shifty? Am I talking about something inappropriate? Have I said something by accident that will make my friend hate me? Masking makes any prolonged social interaction something I need days to recover from. Being “normal” is exhausting, and even masking, I don’t do a terribly good job.

What I’ve tried doing is essentially “coming out” as autistic to my students. Quite a few of them are neurodivergent, which helps. I don’t lead with it day one, but I make it clear that I accept self-diagnoses and self-made accommodations for people who are neurodivergent. Once I start talking, I’m sure some have an inkling. Eventually this semester, I came out to both classes sort of by accident, and it was a MASSIVE relief. I still watch my words and make sure I don’t accidentally hurt someone’s feelings, but not having to worry about eye contact or modulating my speech patterns makes teaching so much less exhausting. Personally, I think I’m more engaging when I loosen up and allow myself to be weird in class (especially knowing the laughs I receive are not mocking). The hope is that it will also make my students more comfortable, and for some, meeting a neurodivergent professor and/or writer may also be affirming.

The problem is that because I’m masking less, when I feel like I need to mask due to the situation (doctor’s office, grocery store, extended family, etc.), it is exhausting. It is so much worse than it usually is because I’m not accustomed to doing it as much. It’s like not exercising and being told to run a mile. I just want to collapse in a heap of social exhaustion after masking now. I used to be able to sort of hold it off until I totally fried myself, which is not great, and it sucks because I want to mask less. I need to. It’s better for my mental health to not be “on” constantly, especially when being “on,” is being akin to being a different person. But I can’t not mask all the time because it isn’t safe to, and the social repercussions of being unmasked around people who don’t understand are not worth the backlash. I absolutely dread the times I need to socially mask now, and I hate how much I’m not looking forward to holiday gatherings because of it. You would think family would be the people you could be yourself with, but when they think of autism as only non-verbal people who have high needs, they don’t believe you, even if you meet the criteria in spades and they think you’re weird.

I’m already still semi in the closet with being queer and nonbinary around my family, so compounding it with not outing myself as autistic, creates a day full of exhaustion and stifling un-Kara-ness. The stiff smiling, awkward(er) version of me feels so pale in comparison to the vibrant weirdo I know I can be when I’m with my students or my friends/partner. I just wish I felt comfortable letting that version of me out more often.